Frequently Asked Questions

How do you use my data?

We use your data to build datasets to enable scientific research that we hope will enhance human understanding of mental health, and most importantly to directly empower interventions. Scientific breakthroughs are often based on collaboration, and that depends on having a common data set. We are thankful and thrilled that you want to help us.

What data are you talking about?

We currently collect messages posted publicly to family and friends on social media networks like Facebook and Twitter (not private or direct messages). We don't cover every social media platform and data source yet, but we are working to expand what can be donated. We plan to expand the types of data you can donate in the future (to include things like email). If you sign up, we will update you as we add other networks and data sources.

I have a question about how these data are used, how do I contact you?

You can reach us by sending an email to umd-support@ourdatahelps.org. In most cases you should receive a response on the same or next business day, however please plan for a maximum of five business days to receive a response.

How can my donation be most effective?

Connect as many networks as possible and complete the questionnaire. There's no data like more data! The more networks you can connect, the more useful your data is to us. Facebook data is useful, but it only paints part of the picture. Facebook and Fitbit is better; Facebook, Twitter, Instagram, and Fitbit is better still. Our algorithms depend on having many views on a person's life, each additional source makes your donation more useful.

That's only half the story though, knowing more about your mental health is critical to understanding what the data is showing. Filling out the questionnaire as best you can will make your donation most effective.

I am not challenged by a mental health condition. Do you still want my data?

Yes! Scientific studies and algorithms alike need a comparison group to highlight what is important and relevant. In particular, when someone who matches your demographics is challenged by a mental health condition, your data provides an invaluable point of comparison. Your data empowers solutions and insight too.

I am a mental health advocate, and I use social media for some of my advocacy. Do you still want my data?

Thank you for your work! Yes, we still want your data. Don't worry, we have some special considerations for those involved in advocacy to prevent our models from being confused by your social media posts. Your data also gives us a unique and quantitative assessment of how we fare in the fight against stigma.

Will you post any messages to my social media accounts?

No. We use this data only to better understand how mental health can be quantified by analysis of the data each of us generates every day. Whenever possible, we opt for the most restrictive set of authorizations required to read the data needed for this research. We will never seek the ability to add content to your social media account.

Why ask for Age?

The ability to break data sets up into accurate groups by age is critical to understanding the data collected as a part of this study.

I have an account that stores data you might find useful, but it's not listed. Will you add it?

Quite possibly, in time. We are working to add more networks and we’ll send out an email as we get those up and working. Feel free to email us at support@qntfy.com and let us know what you’d like us to be able to connect.

I gave you my email address, how often will you contact me?

As a part of this study we need to keep in touch with you to administer the questionnaire periodically. Your agreement to participate also acknowledges a willingness to return these questionnaires. We will email you once per week for the first six weeks after you've completed the initial questionnaire and once per month thereafter until six months past the date you completed the initial questionnaire.

For more frequent updates, you can subscribe directly to Qntfy's mailing list. We will share major accomplishments made possible by your data. We will share major milestones and events. We will share beta-testing offers. We offer you control as part of the signup process to control what we will contact you about. If you'd rather we never contact you again, we will absolutely respect that — and we will take this opportunity here to thank you for your data donation then.

How do I stop participating if I change my mind?

You may opt out of the study so we will no longer collect your data. To withdraw, follow the steps below.

  1. Click here or navigate to your profile by clicking the Profile tab at the top of this page.
  2. Scroll down to the Withdraw section.
  3. Check the box to withdraw from future research.

Who pays for this?

The UMD research group is providing compensation for research participation and we do. Meaning OurDataHelps powered by Qntfy does — from our own pockets.

Does this make money for anyone?

No. Your data will be used to test models we are working on to better understand mental well-being. Those models may one day be used in products. The data you donate will primarily be used by various researchers to make new discoveries about mental health that Qntfy won’t benefit from directly. We want the future of mental health to get here as soon as possible, this is just us doing our part.

Why?

We are scientists, advocates, and researchers interested in shaping the future of mental health research with the ability to make it happen. Usable data is hard to come by. The more sensitive the subject, often the more difficult it is to get helpful data. We hope this research will lead to discoveries that lead to breakthrough treatments. It is possible that if we get enough individual donors that the potential of having access to the data alone could attract interest from other prominent researchers.